The Brittle Bone Society is the only charity working with people who live with Osteogenesis Imperfecta(OI) and supports over 820 members and their families across the UK and the Republic of Ireland. Our work involves addressing isolation and facilitating networking opportunities.

The Brittle Bone Society is the only charity working with people who live with Osteogenesis Imperfecta(OI) and supports over 820 members and their families across the UK and the Republic of Ireland. Our work involves addressing isolation and facilitating networking opportunities. We provide support, signposting, advocacy, factual information, obtain funds towards purchase of specialised wheelchairs and equipment and provide subsidised access to our conference events. We also provide access to the best medical and healthcare professionals in the UK specialising in metabolic bone health disorders. When a parent learns their new baby has the condition it is vital they connect with our Support Worker. We fund specialised wheelchairs (costing £3k-£16k) not available from the NHS that help with mobility and independence. Our latest project – our new Volunteer Support Group Programme helps provide a sense of community to OI families, to help combat isolation, promote living successfully with OI and help families connect with Brittle Bone Society services and resources.